Conference!

Tomorrow, Mom, Dad, and I are taking a train to Philly to go to the VACTERL Conference! I am pretty excited about it, i've been waiting for 2 years to go again and I can't wait. I'm just a bit nervous about having to wake up at 4am and drive to the train station. It'll only be a 4 hour ride, so not much time to sleep. Most of my friends are getting there today, and I've been texting them back and forth pretty much all day. I'm almost completely packed and ready to go, I just know I'm going to forget something. We'll be home on Sunday, and my friend Mathies is coming home with us, which makes me really happy! That's about it for now! Until next time....

Happy Birthday Mom!

Today was really fun! Today was my mom's 51st birthday! It started off early for me, earlier than usual. I had to wake up at around 9:45am because my respiratory therapist came over at 10 to check on how my oxygen was doing. It went well, and we found out that I might be able to get a new bi-pap, which is good, because the one I own is ancient!

She left at around 11, so I had a few hours before Melissa and the girls would be over. I watched "Million Dollar Baby" for the first time, and cried my eyes out. What a sad ending! I walked around most of the day without oxygen, did that yesterday too! I'm feeling 99% back to normal. It's nice to have the oxygen around though, for when I get really out of breath, it helps me catch my breath so much quicker. I also didn't have a headache/migraine today, which was soo nice!

The girls showed up around 5, and dad was here for a little bit before he had to go to a meeting for work. I had SO much fun playing with Madelyn, and seeing Emily growing so quick is amazing! I love when they come over, I can't imagine loving someone so much, but it's possible! Madelyn and Emily are the most loveable people in the world! I love that Maddy is growing up, becomming more of a person. She is SO freaking smart, it amazes me every time I see her. She knows our cars, she knows she's too big for me, which is rather funny. She can sing her whole alphabet song...so much. I love her to death! I can't wait until Emily gets bigger and then I'll have two of them to play with....wait...maybe not so fast, lol. I got worn out, completely, like I do everytime when I play with Maddy. Like I said before, it's a good thing I have the oxygen, because it was used today. I can't help but do whatever Maddy wants me to do. I know she can do whatever she wants me to do for her, but, it's like I can't help it, she's just so cute!

Mom said she had a fantastic birthday! I apologized for not getting her anything, even a card, but she said that just having her family take time to spend time with her was the best thing she could ask for. I love my mom so much! Until next time....

Edit: We got some good photos that i'd like to share!

Madelyn getting ready to help blow out the candles!

After they blew out the candles!

Walking in the yard

Madelyn riding her tricycle!

Getting better!

So, today I have been feeling better. I've noticed that I'm not getting out of breath as often, and I can take the oxygen off and not have to rush to put it back on after a minute or so. Also, my appetite has almost returned to normal, which is great!

Only 17 more days until my VACTERL Conference!! I'll be there whether I need oxygen or not! One of my best friends from the Conference is coming home with us for a week! Mathies, or Mat, is coming home with us. He is one of the few great friends I met through these Conferences, and a website. I'm really happy that I am bringing him home because leaving the Conference is hard, it's only 2-3 days long, and you don't get much time to spend with these people who live all over the world! Mat lives in Denmark, so the only way I am able to talk to him is through instant messenging.

Other than my recent hospital stay, I've been pretty healthy! I hadn't stayed in the hospital since December of 2006! Lets hope I can go longer this time. It stresses out my family so much, and I hate being a burden, which i know i'm not, but it still feels like it. Plus, it's no fun being cooped up in the hospital and feeling like crap.

I guess that's it for now! Until next time.....

First time on here!

Hello!

I am home from the hospital! I got home yesterday afternoon.  Haven't done much of anything since I got home, except for sleeping and lounging around.  The doctors still don't know what exactly is wrong with me.  In my opinion, the Adult ward doctors are retarded!  I do NOT want to e transferred there.  They didn't even know I have VACTERLS!!  I was in a crappy mood the whole time, because those people kept irritating me, and then I'd push my anger off on mom and dad, and i feel really bad about that.  I got some good bruises though.  They even had to try to get blood from my foot, twice!   I'm just really really happy to be home.  I'm not %100 yet, I'm still on oxygen, and that headache still comes around, but, just being in my own home helps.  The cats are avoiding me, the thing that smells funny and has a very very long tail coming out it's nose, and is making really weird noises, lol.

Thanks to my family for being there for me, and making sure I'm ok.  Thanks for everyone else for keeping me in their prayers! Love you all!

I'll try to keep this thing updated.  I have about 5-6 social media networks, lol, but I'll do my best!  Until next time....